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Friday, July 09, 2010
coming out of the psycho closet

:: 17 Comments :: Article Rating :: borderline personality disorder, DBT/ dialectical behavior therapy, guest blogger
 

When Merinda Epstein, a Policy and Law Reform Officer of the Mental Health Legal Centre in Melborne Australia, made the decision to “come out” with borderline personality disorder as a consumer advocate, her therapist was horrified. She asked Epstein, “why would you want to talk about that diagnosis in public for? You’ve got a perfectly good psychotic diagnosis to use in public!”


Such unfortunately is the reaction many of us who self-identify as “borderline” encounter. You can be a drug addict, have depression, OCD, schizophrenia, or any other number of diagnoses and people will shake your hand and congratulate you on your courage and honesty. But if you say you have BPD, everyone—from counselors to well meaning friends to even DBT therapists, will prophesize that you’ve just ruined your chances of ever getting a good job, relationship or credit rating. The last thing you ever want to be in the line-up of mental illnesses is borderline. Even if you have it. Perhaps, especially if you have it.


I didn’t know this at first. I came to the diagnosis from the twelve step community, where they say “you can’t save your ass and your face at the same time.” I didn’t care what I had, so long as I knew there’d be a solution to it. And the doctor assured me there was, in the form of a new treatment called dialectical behavior therapy (DBT). I called one of my few remaining friends as soon as I got out of the doctor’s office. “Good news!” I gushed “I have borderline personality disorder! And it makes perfect sense!”


There was a pause on the other end of the phone and then Laura shrieked, “there is no f-ing way you are borderline!!” I pulled the phone away from my ear. “Why not?” “Think fatal attraction.. Knives and stalking. Psychobitch from hell. That’s not you!”


My drug and alcohol counselor had a strikingly similar reaction when I told her during my next session. “You are not one of those!” she exclaimed. Both she and Laura begged me not to accept the borderline diagnosis. It wasn’t yet even an issue of going public, as with Epstein. Just self-identifying, just hitching my little wagon of dysfunction to this wildebeest elicited overwhelming negative reactions from others. (Borderlines, I should say here, don’t do well with negative reactions. Which is probably one of the reasons why so few of us “come out.”)


And yet, little by little, the trickle is becoming a stream: Borderlines are coming out, voices gathering: Amanda Wang, AJ Mahari, Tami Green, Amanda Smith, Lisa Johnson, Merinda Epstein, to name just some of the most prominent. Go to Facebook, to Myspace, and other social networking sites, and the focus is shifting from message boards with anonymous sufferers to people with real names who are dedicating themselves to advocacy, building community, educating others, and sharing their experience with recovery. In the last year alone, we’ve seen more videos, books, e-books, blogs and public appearances by self-identified borderlines than we have in the past decade combined. Tami Green calls it BPD 2.0. The Borderline Recovery Movement has truly begun.


The thrill is not just that it’s happening, but how invaluably therapeutic the “coming out” process can be when there is the right support. There is more to recovery than treatment. Life is exposure, and challenging the stigma of BPD by “outing” oneself and connecting to others is a powerful technique in transforming shame and building resilience. It is not easy. But we are learning that in standing up and being open about the illness, we are able to challenge and overcome the deep self-hatred and guilt that fuels so much of our BPD symptoms ; that in facing the stigma and surviving the exposure, we are able to deeply accept all aspects of ourselves and others, positive and negative; that through this, we don’t need saviors or caretakers to fix us, but communities and companions to journey with us; that in risking the rejection and braving the pain of having “outed” ourselves, we discover the deep freedom of no longer having to hide; that as we stop fearing the diagnosis, we are no longer controlled by it.

With BPD 2.0 now a reality, a central question becomes: how can treatments and supports help people with BPD navigate the process-- should they want to “come out” and connect with others in the recovery process? The answer is actually quite simple. Help us. Stop telling people with this diagnosis that it’s bad or shameful to have BPD. Affirm that when it’s time, it can be a good thing to “come out.” Just look at all the wild and wonderful people who’ve done it so far! Begin to harbor a conviction that borderline personality is not a curse but an opportunity for growth—both for those who have it, and those near and dear. Catch yourself if you start to think of Borderlines as “them”—the incurable, the lepers of psychiatry, the untreatable. If we continue down that route of condemnation, the river will dry up. Those of us who are finally emerging will retreat back into shame and despair. We will cry, why can’t people recover? And then there will be no recovery. We will never hear the voices of those who’ve passed through the fire, or gained the wisdom of transforming these painful symptoms into strengths. We’ll be right back where we started. Without hope.


And yet, that is the furthest thing from the truth. There is actually much more than hope. There is our experience, a serum of courage and strength that we’ll spoon to each other so long as there are mouths willing to open and hands willing to reach out.


guest blogger Kiera Van Gelder, MFA, is the author of The Buddha and the Borderline:My Recovery from Borderline Personality Disorder through Dialectical Behavior Therapy, Buddhism, and Online Dating. You can visit her at www.kieravangelder.com.

Posted By / 9:30 AM / Friday, July 09, 2010
Comments
comment By Linshaolin @ Friday, July 09, 2010 1:13 PM
Six years ago when we got a call from the college psychiatrist telling us that he was sending our daughtere home because she had Borderline Personality Disorder I had no idea what that was (nor did he bother to explain). Some quick googling left me horrified. Six painful years after self-mutilation, arrest, and intensive therapy we have our daughter again living a productive life. I am thrilled that your book will help others face the realities of the diagnosis and learn that there can be healing.
Love in the dharma!

comment By Dotty Spoor @ Friday, July 09, 2010 2:14 PM
Congratulations Kiera Van Gelder!
I am now "coming out" also. I am 43 years old and I was just diagnosed with Borderline Personality Disorder three years ago. I spent most of my life putting on my "mask" everyday pretending everything was ok until it ate me so bad and I finally sought therapy three years ago, ended an abusive marriage, sold my house, lived by myself for the very first time and moved to a strange town .I have found my spiitual path in Buddhism and moved into a meditation center with amazing woman. I have learned so much about BPD through my own research, with the help of of hospitalizations, therapists and through meeting an amazing women with BPD and becoming very good friends with her. My family and friends have mostly disappeared...I think they believe I have some awful, contagious disease. So I thank you for putting your story out there and to educate people.

comment By Diane S. @ Friday, July 09, 2010 9:44 PM
Kiera, it is so evident that you are doing so much good for people with BPD. Thank you for that and for taking good care of my dear friend Dotty. I understand the "hell" of mental illness and it is empowering to know that there are resources (both internal and external) to turn to to help alleviate the pain. I am sure your book will help many! You're the best, Kiki! Love, Diane

comment By Dotty @ Friday, July 09, 2010 11:00 PM
I am embarrased to say I left out an extremely part of my story and I think maybe for many of us with BPD that with the constant love, support, willing to learn, understanding, the putting up with emotional turbulances of my most dearest friend Diane I wouldn't be as far along in the direction I am today. I would never have been able to do this without her .Many Thanks to you also, I Love You Diane!

comment By N.L. LeBlanc @ Sunday, July 11, 2010 8:02 AM
Great post, Kiera! Stigma is probably one of the biggest obstacles in BPD recovery... I'm convinced your book will help shed some light on what BPD really is, instead of what ignorant people like to believe it is.

Keep up the good work! :) I can't wait to read your book! ttyl <3

comment By Lisa Dietz @ Tuesday, July 13, 2010 10:02 PM
Thanks, Kiera, for your thoughtful comments.
Like you, I was diagnosed with BPD back in the days when therapists refused treatment to anyone with the diagnosis. I felt I would have been better to announce that I was psychotic and a bunny killer. Thank God for DBT. I think Borderlines benefit from traditional therapy, but DBT introduced a real and practical way for those of us who wanted to to live a life worth living. Your book proves it!

comment By Diane and Jim Hall @ Thursday, July 15, 2010 2:49 PM
Dear Kiera, Your book is unique, horrifying yet helpful, excruciating and exquisite. Self disclosure and detailed descriptions of the pain and symptoms of suffering help others to relate and then gather hope when they see the techniques that helped a real person cope in the real world. As the therapeutic realm opens its treatment to engaging those in recovery with BPD to participate with their treatment "teams", the "recovery" statistics will grow. Bravo to your courage and sense of purpose presenting living breathing hope to those with the disorder and their families. You bless our lives, Diane and Jim Hall

comment By buy wow key @ Friday, October 01, 2010 4:47 AM
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comment By sunny @ Saturday, October 23, 2010 11:07 PM
After 7 months of DBT I got kicked out I have never in all my experienced of therapy been treated with such stigma& judgment and knee jerk reaction. The rigid scrutiny was almost like a cruel punishment of control freakism.

When u are with an outside one on one therapist for 10yrs what ever you trust in confidence(verbally or in writing or e-mail) in the other remains private between 2 and is kept in context.With any ambiguities at least asked & questions clarified rather than acted hastily on.Doesn't matter if its the inevitable topics of hate or rage or suicide or murderous thoughts come up -its kept in perspective as passing phases.

No not in the case where the program is attached to a government public health system. Its like a nazi security boot camp everything that gets said is vetted and u even get sent to a disciplinary board if you seem to be too verbally abusive.

They would ostracize me by comments like 'we've never had a person like you in this program we usually refer them on'. Or in all our 3 yrs running this DBT program we've never had any trouble till now why do u think that is?'

Never mind that my seemingly shocking upset reactions were often been triggered by counter transferences & counter over reactions to my expressive vocal ways.

Time again my trauma was re-triggered,my voice & consent was waivered, I was ridiculed humiliated& violated by all my thoughts/feelings aired to peer review team.-most of the time never warning me or omitting irrelevant personal feelings/material.

Every time i kicked up a stink about privacy & asking/checking with me first to consult with me on decisions.When i pointed out this constant disrespect that kept puncturing out trust by thier irrash actions. The therapist in this program was over literal,naive and surprised at my reaction then changed nothing of the detrimental way she & the peer team were unethically treating me.

At the end of it all I was spat out back on my own with no support or follow up by a cowardly good bye good luck message left on my answering machine.

talk about non judgmental or non mindful or forgetting to use skills & over reacting in crisis situations.something they were teaching us.

This experience leaves me cold & angry and thirsty for revenge. the health system get away with so much these so called skilled specialists.

comment By Jody @ Tuesday, October 26, 2010 9:24 AM
Am I crazy? Am I BPD? I'm 73 years old and have looked for answers ALL my life. I loose weight, (Probably l,00 Pounds in my lifetime), I regain it (even after 17 years of success), I have lost ALL my friends (Ones who haven't died, which are many), and now I am Retired recently and have begun to think of my self as "Lazy". I worked 52 years as an Xray Technologist, learning everything about the field I could get my hands on! I have been married (twice), both long term, have 3 children, don't really consider myself as lonely, however, getting my "butt in gear" escapes me at times. I guess I am just so tired after all the efforts of raising children, alone, getting counseling, having many illness, that I am really just exhausted. So again I say, "What's wrong with me?" Reading infor on BPD I recognize my self. I am not addicted to Drugs or Alcohol, but know I am addicted to food. This article on "The Lotus Effect" seems to ring a bell. No one, be it counselor, or friend, seems to want to get involved, because I am really too complicated to try and "unweave" or figure out. I just lost an old friend of MORE than 50 years, beause I finally figured out that we had pratically nothing in common, except we were college roomates. So where are the answers?

comment By jody1501 @ Tuesday, October 26, 2010 9:52 AM
Guess I'm off to buy "The Lotus Effect" or better yet, to the Library. ALWAYS looking for a way to improve my situation. I know this Food OCD is at the root of my problem, but which one of my "monsters" should I "attack" first. Was it the Alcoholic Mother who commited suicide, the abusive husband I lived with for 16 years? Which should I keep working on. I'm soooo tired. Guess I'll get something to eat. A cake would be delightful, or a jar of Peanut Butter. (Neither of which I ever buy, because I will eat ALLLLL of both!!!!

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